Essex baby given £1.79m drug makes 'huge progress'
A baby who received the world's most expensive drug four weeks ago has made "huge" progress, his parents said.
Eleven-month-old Edward, from Colchester, has severe spinal muscular atrophy (SMA) which means he lacks a protein vital for muscle development.
He was given the new gene therapy Zolgensma, which costs £1.79m, through the NHS last month.
His mother Megan Willis said he was now able to support his head and body.




















